Western Australia’s Incapacity Providers has gone dwell with a brand new web site that gives details about the well being issues of individuals with Down syndrome.
The My Voice My Well being web site was designed by Down Syndrome Western Australia via the funding supplied by the state’s Division of Communities.
The net useful resource hub has data on well being subjects related to individuals with DS; lists of public well being suppliers, peak our bodies and non-profit organisations throughout WA that gives help for well being situations affecting individuals with DS; and sources for well being professionals, together with checklists and communication suggestions for working with individuals with DS and different developmental disabilities.
WHY IT MATTERS
It’s estimated that about one in each 1,100 infants born in Australia will develop Down syndrome, which is likely one of the most typical chromosome problems on this planet.
In a media launch, Incapacity Providers Minister Don Punch stated the My Voice My Well being web site will empower households, carers and folks residing with DS with essential data and be a “useful gizmo when visiting well being professionals”.
“Folks with Down syndrome reside lengthy and fulfilling lives, with loads of alternatives to make their very own selections and dwell independently. My Voice My Well being is a superb instance of how we will use data expertise to allow individuals with incapacity to dwell their greatest life,” he stated.
Different international locations have additionally launched related digital sources to help the well-being of individuals with DS. In the UK, the Down’s Syndrome Affiliation has developed the Well being Swap app to empower individuals with DS to make optimistic life-style selections whereas bettering their digital expertise.
In the USA, a platform referred to as Down Syndrome Clinic to You offers up-to-date, personalised well being and wellness data to individuals with DS. It additionally assists caregivers and first care suppliers in giving evidence-based care within the absence of a specialist. It was developed by analysis and scientific groups from the Down Syndrome Program and Lab of Pc Science at Massachusetts Common Hospital, a Harvard Medical Faculty-affiliated tutorial hospital.